Direct-to-consumer Genomics and Genetization of Society: Rethinking Identity, Social Relations and Responsibility

Occupation: Head of the Center of Scientific Information Studies in Science, Education and Technologies
Affiliation: Institute of Scientific Information for Social Sciences of the Russian Academy of Sciences
Address: Russian Federation, Moscow

Journal name

Sotsiologicheskie issledovaniya

Edition

Issue 2

Pages

13-19

Abstract

The article reveals some of the socio-humanitarian problems of direct-to-consumer genomics, examines its influence on the understanding of identity, social relations, and the relationship between consumers and healthcare providers. Particular attention is paid to the prognostic specificity of genetic information, which calls into question the traditional ideas about risks and informing in medicine, forming new areas of “self-care” and new areas of responsibility. Two theoretical approaches to assessing the prospects for the development of genomic medicine are considered: empowerment users and increasing biopower. Particular attention is paid to the concept of genetization of society, which could not completely replace the discourse of medicalization in social studies of medicine and bioethics, but showed how new knowledge about the human genome affects social contexts of the development of biomedicine, fits into broader discussions about health management, defines the research agenda.

Keywords

direct-to-consumer genomics, sociology of medicine, autobiology, bioethics, genetization, medicalization

Acknowledgment

The research was supported by the grant of Russian Science Foundation, project No. 19-18-00422.

Received

27.02.2020

Publication date

16.03.2020

Number of characters

21815

Cite

GOST	Grebenshchikova E. Direct-to-consumer Genomics and Genetization of Society: Rethinking Identity, Social Relations and Responsibility // Sotsiologicheskie issledovaniya – 2020. – Issue 2 C. 13-19 [Electronic resource]. URL: http://ras.jes.su/socis/s013216250008490-2-1-en (circulation date: 20.04.2024). DOI: 10.31857/S013216250008490-2
MLA	Grebenshchikova, Elena G. "Direct-to-consumer Genomics and Genetization of Society: Rethinking Identity, Social Relations and Responsibility." Sotsiologicheskie issledovaniya 2 (2020):13-19. DOI: 10.31857/S013216250008490-2
APA	Grebenshchikova E. (2020). Direct-to-consumer Genomics and Genetization of Society: Rethinking Identity, Social Relations and Responsibility. Sotsiologicheskie issledovaniya (2), pp.13-19 DOI: 10.31857/S013216250008490-2

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